
IACC Science Workshops, September 30-October 1, 2009
IACC Scientific Workshop
September 30-October 1, 2009
North Bethesda Marriott Conference Center
Draft Agenda
Day 1: September 30, 2009
9:00 – 9:30 Welcome, Introductions and Background
9:30 – 11:30 Panel 1: When should I be concerned?
9:30 -10:00 Joint presentation by:
Clinical Experts: Geraldine Dawson, Rebecca Landa
Research Experts: Deborah Fein, Catherine Lord
Family/Personal Experts: Paula Durbin-Westby, Nancy Wiseman
Coordinated by IACC Liaisons: Yvette Janvier, Jennifer Johnson,
10:00 -10:45 Workshop Panelist Discussion (discussion with all workshop panelists)
10:45 -11:30 Public Discussion
11:30 – 1:00 Lunch (on your own)
1:00 – 3:00 Panel 2: How can I understand what is happening?
1:00 -1:30 Joint presentation by:
Clinical Experts: Pauline Filipek, Sarah Spence
Research Experts: David Amaral, Emanuel DiCicco-Bloom
Family/Personal Experts: Ashura Buckley, Denise Resnick
Coordinated by IACC Liaisons: Alison Singer, Edwin Trevathan
1:30 - 2:15 Workshop Panelist Discussion (discussion with all workshop panelists)
2:15 - 3:00 Public Discussion
3:00 – 3:30 Break
3:30 – 5:30 Panel 3: What caused this to happen and can this be prevented?
3:30 - 4:00 Joint presentation by:
Clinical Experts: Robin Hansen, Susan Swedo
Research Experts: Craig Newschaffer, Matthew State
Family/Personal Experts: Lars Perner, Jeffrey Sell
Coordinated by IACC Liaisons: Lee Grossman, Story Landis
4:00 - 4:45 Workshop Panelist Discussion (discussion with all workshop panelists)
4:45 - 5:30 Public Discussion
5:30 Adjourn
Day 2: October 1, 2009
9:00 – 11:00 Panel 4: Which treatments and interventions will help?
9:00 - 9:30 Joint presentation by:
Clinical Experts: Robert Hendren, Eric Samstad
Research Experts: Edwin Cook, Bryan King
Family/Personal Experts: Joyce Chung, Sharisa Kochmeister
Coordinated by IACC Liaisons: Thomas Insel, Stephen Shore
9:30 -10:15 Workshop Panelist Discussion (discussion with all workshop panelists)
10:15 – 11:00 Public Discussion
11:00 – 12:30 Lunch (on your own)
12:30 – 2:30 Panel 5 – Where can I turn for services and What does this hold for the future?
12:30-1:00 Joint presentation by: 1:00-1:45 Workshop Panelist Discussion (discussion with
Clinical Experts: Ted Chapman, Cathy Pratt
Research Experts: Peter Gerhardt, David Mandell
Family/Personal Experts: Ann Gibbons, Marjorie Solomon
Coordinated by IACC Liaisons: Ellen Blackwell, Christine McKee
1:00-1:45 Workshop Panelist Discussion (discussion with all workshop panelists)
1:45-2:30 Public Discussion
2:30 – 3:00 Break
2:45 – 5:00 Discussion and Summary by IACC Subcommittee (IACC Liaisons)
5:00 Adjourn