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Factors Associated with Quality of Life of Mothers of Children with Autism Spectrum Disorders
Jan 1 2013
Jan 1 2014
There has been an increase in the prevalence of Autism Spectrum Disorders (ASDs). Mothers tend to be the primary caregivers for children with ASDs. The quality of life of mothers may be impacted as their maternal care role meets the complex and diverse needs of their children with ASDs.
The purpose of this study is to collect and analyze data on the quality of life and on demographic and individual factors of mothers of children with ASDs.
Eligibility for Study Participation:
(1) Must be an English literate mother over the age of 18 with a child diagnosed with an autism spectrum disorder (ASD)
(2) Must reside in the United States
Participants will be asked to complete an anonymous web-based questionnaire. The questionnaire will require 20-30 minutes to complete. No participant will be identified. All responses will be anonymous.
There are no known risks to participation in this study. There are no direct benefits; however, the information may be used to better understand factors that affect quality of life of mothers of children with ASDs. This may result in recommendations for improvements in health and education services.
Gianluca De Leo PhD, MBA
IRB study/protocol approval number:
Old Dominion University, 12-239
Marian Marconyak MA, PT, Doctoral Student/Student Investigator
Research study is for doctoral dissertation requirements in Health Services Research.