Siblings

Support for Parents - Siblings

Parents who have children with and without autism may struggle to balance each child’s individual needs. In order to foster acceptance and understanding, it is important for parents to inform children of their brother or sister’s condition and explain what it means to have an autism spectrum disorder. Even though a child may understand that their sibling has autism, it may be a source of stress. Several factors can contribute to stress in a sibling of an individual with autism, including:

·Feeling embarrassment around peers

·Experiencing jealousy about the amount of time parents spend with their brother or sister

·Feeling frustration over not being able to engage or the difficulty of building a relationship with their brother or sister

·Being the target of aggressive behaviors

·Attempting to compensate for the deficits of their brother or sister

·Being concerned about parents’ stress and grief

·Being concerned about their role in future caregiving for their sibling

Although there are many potential stressors, siblings usually cope well with their brother or sister’s condition when their parents continue to discuss autism and its potential consequences to them in a way they can understand.

Setting aside a dedicated time for each child helps all of the children in the family feel loved and attended to, while reinforcing the parent-child bond. It is essential that parents also help foster relationships among their children. Supporting the development of sibling relationships is imperative since individuals with ASD often have trouble building relationships or generating emotional connections with others.

These relationships become even more important if siblings decide to take on the role of primary caregiver as their parents age. This role should not be forced upon a sibling but accepted with sufficient understanding of autism and the needs of his or her brother or sister. Before a sibling is old enough to decide to take on such a role, it is crucial that parents do not place an unnecessary burden on them by assigning them to be caretakers or babysitters. Parents should remember that they are children too, and they deserve a fun and fulfilling childhood.

 

Resources for family support:

Family Voices
2340 Alamo SE, Suite 102
Albuquerque, NM 87106
 
PACER Center (Parent Advocacy Coalition for Educational Rights)
8161 Normandale Blvd
Minneapolis, MN 55437
 
Parental Educational Advocacy Training Center (PEATCO)
6320 Augusta Drive, Suite 1200
Springfield, VA 22150
phone: 703-923-0010/ para espanol: 703-569-2000
 
Parent to Parent
c/o Beach Center on Families and Disability
The University of Kansas
3111 Haworth Hall
Lawrence, KS 66045
 
Sibling Information Network
The A.J. Pappanikou Center
249 Glenbrook Road, U-64
Storrs, CT 06269
phone: 860-486-4985
 
The Sibling Support Project
c/o Donald Meyer, Director
The Arc of the United States
6512 23rd Avenue, NW Suite 213
Seattle, WA
phone: 206-297-6368
 
Team Advocates for Special Kids (TASK)
100 Cerritos Avenue
Anaheim, CA 92805
phone: 714-533-8275